Corpus Callosum Agenesis Double Urinary Collecting System Syndrome C2930897
A rare developmental disorder involving absence of the brain's connecting structures and duplication of urinary system parts. Affects brain development and kidney/urinary function. Requires lifelong neurological and urological care.
Key facts at a glance
- ICD-10
- Q89.9
- ICD-11
- LA00.0
- Body system
- congenital
- Severity
- severe
- Chronic
- true
Signs and symptoms
Common signs and symptoms that may indicate this condition.
Warning signs - seek immediate care
Hydrocephalus
Epilepsy
Developmental delay
(nervous system)Generalized symptoms
(congenital)Significant symptoms that substantially affect daily functioning.
Frequency: Common at all stages
Recurrent urinary tract infections
(urinary)Diagnosis and tests
How this condition is diagnosed and what test results mean.
Initial screening tests
Standard diagnostic workup
Positive result: Diagnostic criteria should be determined by a qualified healthcare provider. [Content pending medical review.]
Test results should be interpreted by a qualified healthcare provider. [Content pending medical review.]
Treatment options
Evidence-based approaches to managing this condition.
First-line treatments
Medication management with follow-up
Active treatment with regular monitoring by a healthcare provider is recommended.
Urinary tract reconstructive surgery
Surgical correction of the double urinary collecting system to address structural abnormalities, improve drainage, and prevent recurrent infections or hydronephrosis.
Neurodevelopmental assessment
Regular neurological and developmental monitoring including imaging studies of the corpus callosum and assessment of motor, cognitive, and social development milestones.
Additional treatment options
Motor development therapy
Targeted physical therapy interventions to address hypotonia, motor coordination difficulties, and developmental delays commonly associated with corpus callosum abnormalities.
physical_therapyNeuropsychological support
Comprehensive psychological evaluation and ongoing support services addressing potential learning disabilities, social challenges, and emotional adjustment related to the condition.
psychologicalRenal function surveillance
Regular monitoring of kidney function and urinary tract imaging to detect complications from the double collecting system such as reflux, obstruction, or recurrent infections.
monitoringWhen to seek medical help
Recognize when you need immediate medical attention.
See a doctor within 24 hours
Moderate to severe symptoms that may indicate worsening of this condition. Prompt medical evaluation is recommended.
Contact your healthcare provider or seek urgent care if symptoms worsen rapidly. Go to the emergency department for life-threatening symptoms.
Frequently asked questions
Common questions about this topic.
What is Corpus Callosum Agenesis Double Urinary Collecting System Syndrome C2930897?
Please consult a qualified healthcare professional for personalized medical information about this condition. [Content pending medical review.]
generalMedication Comparisons
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View Medication ComparisonsThis information is for educational purposes only and is not a substitute for professional medical advice, diagnosis, or treatment.
This content is for general informational and educational purposes only and is not a substitute for professional medical advice, diagnosis, or treatment. Always seek the guidance of a qualified healthcare provider with any questions you have about a medical condition, and never disregard professional medical advice or delay seeking it because of something you read here.
If you think you may have a medical emergency, call your local emergency number or go to the nearest emergency department immediately.
Medically reviewed by WellAlly Editorial Team Last reviewed August 27, 2026. · Read our editorial policy