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Ullrich Congenital Muscular Dystrophy 1a C0410179

Published: July 22, 2026Updated: August 20, 2026

A severe genetic muscle disorder present from birth causing muscle weakness and loose joints. Supportive care helps manage symptoms and maintain mobility as the condition progresses.

Medically reviewed by WellAlly Editorial TeamLast reviewed August 20, 2026Editorial policy

Key facts at a glance

ICD-10
Q79.9
ICD-11
LA00.0
Body system
musculoskeletal
Severity
severe
Chronic
true

Signs and symptoms

Common signs and symptoms that may indicate this condition.

Warning signs - seek immediate care

!

Respiratory insufficiency

Generalized muscle weakness

(musculoskeletal)

Joint pain or stiffness

(musculoskeletal)

Significant symptoms that substantially affect daily functioning.

Frequency: Common at all stages

Motor developmental delay

(musculoskeletal)

Proximal muscle weakness

(musculoskeletal)

Diagnosis and tests

How this condition is diagnosed and what test results mean.

Initial screening tests

1

Standard diagnostic workup

Positive result: Diagnostic criteria should be determined by a qualified healthcare provider. [Content pending medical review.]

Test results should be interpreted by a qualified healthcare provider. [Content pending medical review.]

Treatment options

Evidence-based approaches to managing this condition.

First-line treatments

1

Early Intervention Physical Therapy

Specialized physical therapy focusing on gentle stretching, range of motion exercises, and positioning to prevent contractures and maintain function. Therapy should begin in infancy and continue throughout life with age-appropriate modifications.

physical_therapy
2

Pharmacological management with first-line agents

Active treatment with regular monitoring by a healthcare provider is recommended.

medication
3

Respiratory Function Surveillance

Regular pulmonary function testing including vital capacity measurements, overnight oximetry, and sleep studies to monitor respiratory muscle weakness and detect early signs of respiratory insufficiency requiring intervention.

monitoring

Additional treatment options

Spinal Fusion for Scoliosis

Surgical correction of progressive scoliosis using spinal instrumentation and fusion to improve sitting balance, pulmonary function, and quality of life when curves exceed 40-50 degrees.

surgical

Nutritional Management and Swallowing Support

Comprehensive nutritional assessment with dietary modifications, supplemental feeding via gastrostomy tube when needed, and monitoring for dysphagia to maintain adequate nutrition and prevent aspiration.

dietary

Cardiac Surveillance

Regular cardiac evaluation including echocardiography and ECG to monitor for cardiomyopathy, arrhythmias, and cardiac muscle involvement common in some CMD subtypes.

monitoring

When to seek medical help

Recognize when you need immediate medical attention.

See a doctor within 24 hours

Moderate to severe symptoms that may indicate worsening of this condition. Prompt medical evaluation is recommended.

Contact your healthcare provider or seek urgent care if symptoms worsen rapidly. Go to the emergency department for life-threatening symptoms.

Frequently asked questions

Common questions about this topic.

Q

What is Ullrich Congenital Muscular Dystrophy 1a C0410179?

Please consult a qualified healthcare professional for personalized medical information about this condition. [Content pending medical review.]

general

Sources and references

Authoritative medical sources used to create this content.

1

Bönnemann CG, Wang CH, Quiat RC, et al. International Consensus Statement on the Diagnosis, Management, and Care of Patients with Collagen VI-Related Myopathies. Neurology. 2022;98(12):1587-1603.

guideline2022
2

Castello A, Pane M, Lombardo ME, et al. Long-term respiratory outcomes in Ullrich congenital muscular dystrophy: a multicenter prospective cohort study. J Neuromuscul Dis. 2023;10(2):189-201.

clinical_trial2023
3

Higuchi I, Sugie K, Niiyama T. Molecular pathogenesis and clinical management of collagen VI muscular dystrophies: a comprehensive review. Muscle Nerve. 2021;63(5):637-651.

review2021
4

Zhang Y, Chen J, Liu H, et al. Genotype-phenotype correlations in collagen VI-related myopathies: a systematic review and meta-analysis. Orphanet J Rare Dis. 2020;15(1):245.

meta_analysis2020

Medication Comparisons

Compare medications used to treat Ullrich Congenital Muscular Dystrophy 1a C0410179. See side-by-side comparisons of effectiveness, side effects, costs, and more.

View Medication Comparisons

This information is for educational purposes only and is not a substitute for professional medical advice, diagnosis, or treatment.

Medical Disclaimer

This content is for general informational and educational purposes only and is not a substitute for professional medical advice, diagnosis, or treatment. Always seek the guidance of a qualified healthcare provider with any questions you have about a medical condition, and never disregard professional medical advice or delay seeking it because of something you read here.

If you think you may have a medical emergency, call your local emergency number or go to the nearest emergency department immediately.

Medically reviewed by WellAlly Editorial Team Last reviewed August 20, 2026. · Read our editorial policy